Neena Nizar

Dr. Neena Nizar is the Founder and Executive Director of The Jansen’s Foundation, advocating for research of Jansen’s metaphyseal chondrodysplasia, a rare skeletal disease affecting both her and her sons. She recently graduated from Creighton University with a doctoral degree in educational leadership, was named the 2018 Nebraska Mother of the Year, and has worked tirelessly to carve new treatment pathways for Jansen’s Disease in collaboration with leading medical professionals. Her inspiring Ted Talk can be found here.